There have been many individuals, families and professionals who have shared their unique stories about Dementia with us. We have seen these situations first hand which gave us the idea to put our £650k family home in a prime location in Northampton as a win a house competition www.winahouse.net To this end one person may win this family home mortgage free whilst also raising awareness and up to £1 Million for Dementia.
Since beginning this “journey” which started with the “Lady in The Park Dog Walk” we have come into contact with many people and well wishers and have had some wonderful letters of support. One company Austin Macauley Publishers have put us touch with one of their authors William Wood who has kindly written this touching guest blog from a care givers perspective.
Thank you William for sharing this!
“Learning about dementia through the media is one thing, and thankfully we are all becoming better informed. However, first-hand experience of dementia is quite another matter. It took me a long time, when caring for my 90-year-old parents, to come to terms with it. I do not think I used the term dementia at first. I just thought my mother was being particularly awkward. The penny dropped when one day my father, enfeebled himself by a weak heart, said to me, “It’s not her fault, you know.” And I realised how badly I had been treating her.
I realised, too, over the four years I lived with and cared for my parents that there are different kinds of dementia. My mother had had a stroke and, to coin a phrase, had lost her mind. She remembered her past and knew who I was but could not cope with daily living. She did not know what day it was or whether she had had breakfast or not. She was endlessly repetitious. My father’s dementia was gradual, different but in the end just as complete. He was the youngest of six siblings but when I went through one of his old holiday photo albums with him he did not recognise any of them nor even his parents. Only ten years earlier when I had helped him write his autobiography his mind was much sharper. He recollected his war service in some detail, for example. Loss of memory is loss of identity.
The sad thing is I lost both my parents several years before their clinical death. As a therapy almost, I wrote a book about caring for them in their decline in all its sadness and its humour. The book is called Trying to Care and is published by Austin Macauley Publishers. You can find out more about it here https://www.austinmacauley.com/book/trying-care
Raising awareness about the disease and raising fund to help support families dealing with this is incredibly important. With our ageing population, it is likely that we will all be affected by it in some way, either as a patient or as a family member caring for them. It is the responsibility of every person reading this to get involved in raising funds and awareness for this cause.”
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